Essential Tremor Facebook Groups: Building Communities

As of 2020, there were 2.7 billion active users on Facebook – that is about 1/3 of the total world population! Naturally there are many types of people on Facebook with a myriad of passions and interests. A Facebook Group helps facilitate people with similar shared interests to learn and grow together as members.

There are at least 20 Facebook Groups dedicated to Essential Tremor. These Groups may have a particular focus and provide a range of content such as ET awareness, peer support, and regional focus.

If you are living, or caring for a loved one, with ET, there is a wide array of knowledge and insights available by joining Facebook Groups. But it is the ability to connect with others who have similar day-to-day challenges that is especially important. The following Facebook Groups cover many different topics related to ET and encourage participation among the members of the community. *

In Living with Essential Tremor you can find posts about people with ET who meet the challenges they confront and excel at an activity. For example, one participant is a gentleman named Shakey, a painter from Australia who discusses displaying his talents on the walls of a tavern.

The International Essential Tremor Foundation is an organization dedicated to providing hope for the essential tremor community through awareness, education, support and research. You can join over 13,000 members sharing personal stories of life with ET, get updated on news and access podcasts and more. Their Facebook group, The Essential Tremor Awareness Group has 11.4K followers active 24/7 from all around the world.

In the Movers and Shakers Group, one woman is trying to get the word out about ET by sharing information and videos. You can read stories about people living with ET, treatment options as well as recommendations for caregivers.

The Essential Tremor Support Group provides insights into potential treatments, both science-based medicine and alternative remedies. There are articles that highlight how you can learn about the benefits and drawbacks of treatments from the point of view of a person living ET.

In the HopeNet Group, you can find information about treatment options as well as early-stage research and how it may impact potential treatments in the future. HopeNet is dedicated to spreading awareness for ET and shares news and information for the ET community.

The National Tremor Foundation is an organization that aims to provide help, support, and advice to those living with tremor and is active in the UK. You can join their meetups, a recent gentle chair yoga session, or access their newsletter.

Facebook Groups on ET have a common objective to help people living with ET live their lives to the fullest by providing a digital space to share with one another and learn from each other.

* Insightec does not review or endorse any patient Facebook groups and cannot guarantee that the content in any Facebook group is accurate or complete. This information is not intended to be a substitute for professional medical advice. Always discuss treatment options with your physician or other qualified health provider.

 

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